Contact
You Are Not Alone. We’re Here to Help.
Living with a KCNA2 diagnosis can feel overwhelming but you don’t have to do it alone. Whether you’re a newly diagnosed family, a caregiver looking for support, a clinician, or a researcher, we’re here to connect, guide, and listen.
Make Your Donation Online
Mail Donations To:
KCNA2 Epilepsy, Inc
6900 Granger Rd #203
Independence, OH 44131
Phone: 216-954-6556
Email: kcna2epilepsy@gmail.com
Join the KCNA2 Family Contact List
Are you or your loved one diagnosed with KCNA2? This is our contact list, created by KCNA2 Epilepsy, to better understand and support our community. By joining our contact list, we can communicate with you about KCNA2 news, information, clinical trials and more.
Science Driven Clinical Trials
As of today, there is no cure and no FDA approved treatment for KCNA2. Current literature available about KCNA2 is often qualitative, and focused on identifying characteristics of those individuals diagnosed with KCNA2. 
Join Our Facebook Community
Our private Facebook group is for caregivers of individuals with KCNA2-related conditions. To request access, complete the form on our private Facebook page and we will contact you.
Share a loved one’s journey
Since 2015, KCNA2 developmental encephalopathy has been identified through genetic testing. Since then, parents and caregivers from around the world have connected and are building a community of KCNA2 families.
If you are a parent, caregiver, or professional who would like to share your story and photos, please submit it to our web site below. Your story can be published in English and your native language.