Share Your Story
Share A Loved One’s Journey
You are not alone. Since 2015, KCNA2 developmental encephalopathy has been identified through genetic testing. Since then, parents and caregivers from around the world have connected and are building a community of KCNA2 families. Collectively, we support each other and advocate for research and therapeutic interventions that will more effectively help our loved ones diagnosed with this rare epilepsy. If you are a parent, caregiver, or professional who would like to share your story and photos, please submit it to our web site below. Your story can be published in English and your native language.