Pedro is a loving teenager with a beautiful laugh and eyes like enormous windows full of curiosity about life. He was diagnosed with a KCNA2 mutation at age 7.
What He Loves:
Pedro is fascinated by hairdressing. Anything involving hairdryers and brushes captures his full attention. He’s also a talented singer and enjoys playing the guitar. Music has been a meaningful part of his journey, offering comfort and joy in many ways.
What He’s Taught Us:
Pedro teaches us to live in the present moment.
Therapies & Equipment:
Physical therapy and hydrotherapy, which provide structure, physical activity, and a sense of regulation outside the home
A special school program where he cooks, paints, and participates in moderate physical activity
While cognitive progress has been limited, these activities offer him a sense of belonging; a place to return to, friendships, and a rhythm that feels like his own world
Therapies & Equipment:
Physical therapy and hydrotherapy, which provide structure, physical activity, and a sense of regulation outside the home
A special school program where he cooks, paints, and participates in moderate physical activity
While cognitive progress has been limited, these activities offer him a sense of belonging; a place to return to, friendships, and a rhythm that feels like his own world