Parent Support Group
Parent Support Group
The goal of KCNA2 Epilepsy, Inc. is to provide a public forum for families, caregivers, and professionals to support, and connect with families who are affected by KCNA2 developmental and epileptic encephalopathy. You can get involved in our community on this web site by submitting your story, contributing to the newsletter, donating, or identifying research opportunities available for individuals diagnosed with KCNA2. Together we can advocate locally and globally for research, treatment, and a cure for this rare epilepsy.
Facebook Group
If you or your child is diagnosed with KCNA2, please consider joining our private Facebook group called, KCNA2 Parent-Connection. In only three years, our group already includes over 60 families from around the globe. Our solution-focused community shares the many challenges and successes we experience as we navigate through the sometimes-overwhelming choices we are faced with pertaining to medications, seizures, therapies, and educational options available to our children. While we learn from each other, we also help to educate the many physicians, therapists, and teachers who are not familiar with the impact of KCNA2. Collectively, we advocate for our children and support each other. If you or someone in your family has a diagnosis of KCNA2, please consider joining our Facebook group and become a part of the KCNA2 family.