Our Stories

The KCNA2 mutation affects families from around the globe. Each case is unique with its own challenges and triumphs. Click on the links below to read our stories

Damian's Story

Damian's Story

Read Damians’s Story

Alex's Story

Alex's Story

Read Alex’s Story

Antonin's Story

Antonin's Story

 Read Antonin’s Story

Avery's Story

Avery's Story

Read Avery’s Story

Roman's Story

Roman's Story

Read Roman’s Story

Giana's Story

Giana's Story

Read Giana’s Story

Nya's Story

Nya's Story

Read Nya’s Story

Aggelos-Paisios's Story

Aggelos-Paisios's Story

Read Aggelos-Paisios’s Story

Madison's Story

Madison's Story

Read Madison’s Story

Llana's Story

Ilana's Story

Read Ilanas’s Story

Aaron's Story

Aaron's Story

Read Aaron’s Story

Paula's Story

Paula's Story

Read Paula’s Story

Fride's Story

Fride's Story

Read Fride’s Story

Leo's Story

Leo's Story

Read Leo’s Story

Nele's Story

Nele's Story

Read Nele’s Story

Sacha's Story

Sacha's Story

Read Sacha’s Story

Ines' Story

Ines' Story

Read Ines’ Story

Emerson's Story

Emerson's Story

Read Emerson’s Story

Cory's Story

Cory's Story

Read Cory’s Story

Amaia’s Story

Amaia’s Story

Read Amaia’s Story

Siyeon Kim's Story

Siyeon Kim's Story

Read Siyeon Kim’s Story