Madison’s Story

My daughter Madison (Mady) is 12 years old. She was diagnosed with KCNA2 almost 3 years ago. She is also diagnosed with Lennox Gastaut Syndrome (LGS), Intractable Epilepsy, Congenital Hypotonia, Ataxia, Gait, Tremors, Abnormal Cerebellum, Small Vermis, Anxiety with Tics, Global Developmental Delays, and Low Muscle Tone, and possibly Vertigo. She is very sensitive to sunlight (trigger for seizures and tremors). She is a very happy, sweet girl. She Loves LOL Surprise dolls, painting, playdoh, building with Legos which are all good Occupational Therapy for her. She has been home schooling during the Covid-19 crisis and all appointments and therapies are cancelled until Coronavirus goes away. Our motto is SAFETY FIRST!!!